Periodiciii 2015-12-08 17:11:02
I would really really like some advice right about now. I have to worn
you though, this is basically a total core dump of all my
ostomy-related problems of the past month. Still, I would greatly
appreciate any help with my problems.
I had very bad UC, colectomy, ostomy put in with promises of a
J-pouch. Was to be 3 stages due to the state I was in.
First and second stages of surgery completed, now I’m awaiting my
third one. In less then a week I will be having a meeting with my
surgeon to plan the date for the final stage. However, in the past
month my stoma has sunken to effectively below my skin level. This is
an obnoxious problem… but I don’t really know how to approach it.
Theoretically, I will be without stoma within a month. At the same
time, I’m having real problems with skin breakdown, c*** leaking
beneath the seal within hours of putting a new bag on necessitating a
new bag, and weird peripheral symptoms. It’s just very frustrating, as
every changing of the bag is h***, and I usually spend the next few
hours wincing at all the strange sensations and praying that the seal
does not leak.
Now for those weird peripheral symptoms I mentioned:
1) The area of the scar/incision (most of you know it, the huge
vertical purply snake down your stomach) seems to be inflamed by the
adhesive on my pouch. All of the other skin is fine and totally normal
looking (excluding that around the stoma, of course), but the skin
around the incision gets very red, puffy, and starts oozing a smelly
pus-like substance, and I am totally mystified as to the cause. The
adhesive section itself is not the wafer, but a transparent tape-like
section outside of the wafer, so I can see this happening, including
pus crusting over and all kinds of really appetizing stuff. Of course,
in response to this I have removed that bit of adhesive, but that has
a tendency to (of course) minimize total wear time in a bad way, and
make me very self-concious that one half of my pouch is only a little
bit of adhesive away from coming off.
I’m just wondering if ANYONE has experienced this before, and can give
some advice as to what the h*** is going on. I’ve only had this happen
for the past month or so, so perhaps I’ve developed an allergy to the
product, but it doesn’t feel like one, as the rest of my skin looks
totally normal. It’s just the skin near the incision.
2) I get itchy. Like really really unbelievably itchy, all over my
body. This usually occurs in hot situations, or situations where I’m
nervous or otherwise. I feel really stupid asking this, since it seems
so obviously linked to some sort of sweat-thing, but the thing is I’ve
never experienced anything like this before. It feels like the
insatiable itchieness that I experienced while on a heavy dosage of
Dilaudid, just an incredibly itchy, uncomfortable total body
experience. I’m not even really the kind of person who sweats a lot.
Once again, I ask if anyone has experienced this before.
Maybe 1 and 2 are linked. I don’t know. It just feels like my life is
crumbling under the weight of a million really obnoxious things. It
just feels to put this down as 1’s and 0’s.
Thanks for any help or knowledge or anything really,
Kristen313 2015-12-08 17:11:07
Are you using a convex wafer or an ostomy belt?
Snidercj 2015-12-08 17:11:15
I use Eakin Seals and when I use the 2″ size I stretch it just enough
to fit over the stoma and place it snug against the stoma before I
place the wafer over it. If I use the larger 4″ material I cut a strip
about 3/8 ” wide and wrap it around the stoma flat against the skin
and snug next to the stoma. I use a hair drier on low heat to
completely dry the area around the stoma and then spry with 3M Cavilon
no sting skin prep spray and dry again, then place the Eakin Seal
before placing the wafer over it. I get 7 days wear time with this
method. See info about Eakin Seals at this link: :
http://www.eakin.co.uk/ Call Convatec toll free at
1-800-422-8811 and ask for free Eakin Seal sample
3M 3346A Cavilon No Sting Barrier Film – 28ml. Spray, One
Product Details Stock #: 3346A
Skin Barriers by 3M. Designed specifically for use under adhesive
products to form a protective film between skin and adhesives. An
alcohol-free, sting-free, quick-drying, non-cytotoxic liquid film
which forms a breathable transparent protective coating on the skin.
It is intended to protect intact or damaged skin from urine, feces,
and other body fluids and adhesives. Completely alcohol-free formula
will not sting even when applied to damaged or denuded skin.
Clinically proven to provide up to 72 hours of protection from
irritation of urine and feces, Sterile, non-cytotoxic: will not
interfere with skin or wound healing. Hypoallergenic. Provides
superior protection from adhesive tape trauma to reduce skin tears and
complications related to tape use.
Maybe this will help, Charles in TX
Noel 2015-12-08 17:11:19
You could have an infection in your incision. I experienced the same thing
with my surguries. I also tried for the j-pouch but my colon was too
diseased. Had quite a few unexplained skin problems (skin next to stoma
turned purple then just seemed to disappear, quite painful; also infection
in my incision) but after many weeks things finally worked out. I think my
body was in shock and rejected things put on my skin. I used ‘duoderm’ over
my sores (Eakin seals would work as well too, but I didn’t know about them
then) and changed my pouch every 2 or 3 days. Have your incision looked at
before you go in for your final surgery. You don’t want to show up surgery
day and be told they can’t operate due to your skin problems. After all they
may have to cut the same incision site.
This could be a yeast infection. It can cause your incision to ooze as well.
Or you could be having an allergic reaction. Your doctor can recommend a
good dematologist to diagnosis your skin itch.